Support FOP Friends this Christmas

We are selling our Christmas cards once again.

They can be purchased via one of our families, or through our eBay shop.  Click here to Buy Now!

All profits go towards FOP Friends’ quest to find a treatment and a cure for FOP.

If writing and posting cards isn’t your thing, why not send your friends and family a Christmas message via social media and make a donation to FOP Friends.

Visit our Virgin Money Christmas Card Campaign page, to choose your card and make your donation.

Remember, every donation we receive, however large or small, is gratefully received and truly makes a difference.

Great Run have announced a December challenge that is sure to have you running on Christmas cheer and keep you from going crackers!

The challenge is to complete the 12 Runs of Christmas (or more runs if you wish) of any distance between 1 & 25 December.  Your reward is a tree-mendous medal that will light up any Christmas tree.

Everyone who enters will be sent a unique medal that can be worn with pride or hung on your Christmas tree, but which will you get?  Great Run have created 3 different festive medals and inspired by Secret Santa tradition, you won’t know which medal is yours until it lands on your doormat!

But wait, there’s myrrh…  the challenge includes an optional distance challenge.  Depending how far you run over your 12 (or more) runs, you will be awarded with a bespoke digital finishers certificate to download and share:

• A round of santa-plause – 30 Miles
• Run Run Rudolph – 60 miles
• There’s snow stopping you – 100 miles

There is a separate Christmas challenge for runners aged 14 years and under:  The Little Star challenge is for ages 9 & under, and The Nightmare Before Christmas challenge is for ages 10 to 14 years.

The weather outside is frightful, but this delightful challenge will fire you up to keep on running through December! Whether you run in elf-isolation, or sign up with your tinsel troupe, may all your miles be merry!

Find out more and enter here:  https://www.greatrun.org/virtual-running/accumulator/december

Click here: https://uk.virginmoneygiving.com/fundraiser-portal/userSignIn to set up your Virgin Money Giving Fundraising page!

If Covid has cancelled your Christmas party this year, why not ask your employer to donate part or all of the cost of your festivities to FOP Friends?

All you need to do, is decide on your pledge amount for your charity (us!) and then notify Xmas Party Heroes on their Contact Us page.

Send your donation directly to FOP Friends…..we receive 100% of your donation!

Take some photos and share your donation on your social media platforms with the hashtag #XmasPartyHeroes

Sit back and take some seasonal joy that you have made a difference to the lives of people living with FOP.

If you aren’t having your usual gift-share this year, or you simply don’t want or need anything, why not set up a Facebook Fundraiser and make Christmas an extra bit special for those living with FOP?

Click the image to get started…