Grants for Families
There are many charities, grants, and trusts available who can support individuals with the additional costs that living with a disability brings. FOP Friends is not a grant-making charity and is not able to offer financial support to individuals or families. However, we have compiled a list of some sources of funding as a starting point for people.
Please take some time to check the eligibility for the grant before you apply. You may also need to apply to more than one funder in order to secure the money required.
The links take you to external websites. We have provided these links in good faith. However, we cannot accept any liability for the content of external websites.
You are strongly advised to check the suitability of these sites before you provide any personal, medical, or financial information.
The Harold & Elaine Kaplan Quality of L.I.F.E Awards
This Award is the only grant that is available exclusively to those living with FOP. It is available to those living in the UK. It is granted by a committee, facilitated by the IFOPA. Anyone with a confirmed diagnosis is welcome to apply. Every person with FOP is entitled to a grant of $1,800, with the recipient deciding if they want to use the grant all at once, or in smaller increments across a number of years.
For more information about what the L.I.F.E Award can be used for, and how to apply, visit the IFOPA’s website: Living Independently with Full Equality.
UK Government Disabled Facilities Grants
You could get a grant from your council if you’re disabled and need to make changes to your home, for example to:
* widen doors and install ramps
* improve access to rooms and facilities – eg stairlifts or a downstairs bathroom
* provide a heating system suitable for your needs
* adapt heating or lighting controls to make them easier to use
Click here to learn more: https://www.gov.uk/disabled-facilities-grants
Scottish Government: Independent Living Fund
ILF Scotland was established in July 2015 following the UK Government’s closure of the UK ILF, to safeguard the rights of disabled people in Scotland to live independent lives. The fund enables disabled people with high support needs to choose to live in their communities.
ILF Transition Fund
The ILF Transition Fund is focused on supporting young disabled people, aged between 16 to 25, who are at an important transitional stage in their lives. It aims to promote independence, community participation, social inclusion and confidence amongst young disabled people, improving outcomes to help make a smoother transition from childhood into adulthood. Find out more at: ILF Scotland
Shelter: Cymru
If you have a disability and cannot get around your property, or use all the facilities, it may be possible to get adaptations carried out to make your home more suitable for you.
Whether you rent or own your own home, you might be able to get help for any adaptations through the ENABLE – Support for Independent Living scheme, supported by the Welsh Government. Visit: www.gov.wales/housing
Contact for Families with disabled children
Contact has excellent advice and guidance for all aspects of supporting a child with a disability. Visit their website: www.contact.org.uk
Or click here for a downloadable resource library: www.contact.org.uk/about-us/resource-library/general-grants-list/
Independence at Home
Independence at Home supports people of all ages living at home with a disability or long term illness. They provide small grants for people who need financial help towards the cost of improving someone’s independence, comfort, safety, and quality of life at home.
For more information, visit: www.independenceathome.org.uk
Carers Trust
Many tourist attractions will allow the carer of a disabled person to visit for free. Click here to learn more: https://carers.org/out-and-about/free-entry-for-carers-to-visitor-attractions
For further information and help regarding how to apply for a grant, the Carers Trust has some guidance here: https://carers.org/grants-and-discounts/introduction
WellChild
WellChild is a national charity that supports sick children. They have a list of grants and alternative sources of funding for specific requests. Visit their website for further information: www.wellchild.org.uk
They also offer garden and bedroom makeovers: https://www.wellchild.org.uk/supporting-you/garden-bedroom-makeovers/
SkyBadger
For help with all aspects of your finances, when supporting a child with a disability, visit the Skybadger website. They have range of information from ensuring you are receiving the correct level of benefits, to grant sources to provide bespoke equipment.
Disability Grants
A website offering further grants, suitable for both adults and children with a disability.
https://www.disability-grants.org/
