The Team at RNOH

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The UK’s centre for excellence for FOP is based at the Royal National Orthopaedic Hospital in London, led by Professor Richard Keen.

The experienced and knowledgeable FOP team at the RNOH is led by Professor Richard Keen, who works alongside Dr Judith Bubbear and Martyn Dudley, Clinical Nurse Specialist.  Dr Alex Chesover has recently been appointed to the team, sharing his time between RNOH and GOSH.

The RNOH is also the UK’s main trial site FOP clinical trials.

Royal National Orthopaedic Hospital, Brockley Hill, Stanmore HA7 4LP

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The RNOH can also support families and patients living with FOP, through referrals to other departments and services including:

* A social worker to assist with DLA and other advice

* Wheelchair services

* Occupational therapy

* Hearing

* Liaise with and advise local healthcare providers, including GPs

* Referral to other services

If you are concerned you may have FOP and would like to speak to an FOP specialist, or if you would like to be referred to the team at the Royal National Orthopaedic Hospital, ask your GP or consultant at your local hospital.

The NHS allows you to choose where you receive your care.  Read more about it here: NHS Choices

Professor Richard Keen


Clinical Nurse Specialist Team for Metabolic & Rheumatology Service

Tel: 0203 947 0184


This phoneline will be answered by a nurse between 3pm and 4:30pm Monday – Friday.

At other times, please leave a message and they will aim to return your call / respond to emails within 24 – 48 hrs (during office hours).

This is for clinical queries such as advice about medication, side effects, advice and support.

In a clinical emergency please call 111/999 as appropriate. 

Watch the RNOH’s Welcome Video